Friday, October 18, 2013


Written Oct 9, 2008

Hannah has gotten herself into trouble!
On Wednesday she commando crawled her needle right out of her port! She was playing and wanted to crawl and pulled her self across the bed and her needle was dislodged. It was poking her and she was upset so I removed her dressing and the needle out of her chest. She instantly was a happy baby. She has to have her port accessed 24-7 while she is having radiation and since she is receiving TPN and lipids (IV nutrition) 12 hours each day.
I called my new friend Harmony (Lillie's mom - continue to pray for Lillie) to share with her my experience and she informed me the clinic nurses may still be at the clinic. It was around 5:30 in the afternoon, so it was past clinic hours. I did not want to set in the ER for who knows how long so I went up stairs to the clinic first. It was closed but a few nurses were still their. They called the doctor on call and got the ok to reaccessed Hannah! We were in and out in less than 30 minutes. Thank you Jesus and thank you Harmony for the incite!

Today on the other hand is always one of the busiest days of the week. Thursdays are hard on everyone especially little Hannah. She had radiation this morning at 8 am. Hannah did great and awoke from the sedation happier than ever! Then we arrived at the hospital at 9:30 am. Hannah had physical therapy and did great!

Hannah was in the crawling position (on her hands and knees with support of course) and she pulled her left leg forward! YEA! What a wonderful miracle. She was not doing this or even wanting to try it yesterday and she did it three times in a row! I was so proud of Hannah. Also, Hannah's physical therapist Jenny was asking Hannah if she wanted a toy. She said, "Do you want this toy?" and Hannah replied, "Yes!" as plain as day she said YES! Both, Jenny and I's jaws dropped with amazement. Hannah has never said yes before. She has nodded her head yes but has never spoken it!

After physical therapy we went up to the clinic. We waited and waited and waited. It is a very busy clinic. It's so sad to see all the sick kids. Hannah had her blood drawn and we had to wait a little longer for the results. Hannah's ANC is 753, it is still going down. Her platelets were only 19! (The normal range is between 150-400) While at the clinic Hannah received her weekly chemotherapy and a platelet transfusion. She did really well all in all. Finally, after spending 5 1/2 hours at the hospital we were on our way back to the apartment. We ALL were exhausted.

Keep the Faith!
Pray for Hannah's lab counts to improve!

"Faith is the confidence that what we hope for will actually happen; it gives us assurance about things we cannot see." Hebrews 11:1

****Only 2 more radiation treatments!****

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