Friday, January 10, 2014


Written Nov 28, 2008
Hannah finally went into surgery at 6:00pm.

She was diagnosed with Hydrocephalus (fluid on the brain). The surgery was to place and EVD (External Ventricular Device/Drainage). The EVD is a catheter type device that lets the extra cerebral spinal fluid (CSF) exit the brain so that the swelling from the hydrocephalus can reside. Hannah just had a CT scan of her head last week so in less than a weeks time this has occurred.

The "plan" is to watch her for the next 3-4 days and test her CSF and monitor the pressure of her brain with the EVD. Then at some point in time Hannah will have another surgery to place a shunt or some new thing that is similar to a shunt.

The old ommaya reservoir is not 100% to blame for the hydrocephalus and this whole issue. There are a lot of other factors that could have caused this too happen. It 'COULD' be due from the radiation and dead cells sloughing off and clogging the ducts in the brain as well as other issues. But as of now the doctors are not certain what is causing the problem.

As for Hannah she is pretty much out of it. She WILL now respond when spoken to and open her eyes and she will move her eyes around to try to look at you. Her eyes are still not dilated like normal. The are reacting to light which is really good. She enjoyed watching/listening to Piglets Big Movie today; it is her favorite movie since we have been in the hospital.

This evening she started to run a low grade temperature. The Tylenol has seemed to help. Hannah went potty four times yesterday so she is healing up great from the bowel obstruction surgery last Sunday. We are unsure when she will be able to resume her chemotherapy protocol. Hopefully we will find out more information about her chemotherapy regimen tomorrow.

I will try to update as much as I can. Please continue to pray for the doctors and nurses. Also, pray for Hannah's strength and for a complete healing of her body to take place.

"In my distress I cried to the Lord, and he heard me."
Psalm 120:1

Keep the Faith!

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