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Sunday, August 18, 2013

8.18.2008

Written August 24, 2008

August 18th

Day 13

Hannah's blood count was down today and had to receive a unit of Packed Red Blood Cells. She has been really nauseated and not really feeling that great. 
However, they did decrease her morphine pump.
Once Hannah was done getting the blood with in a couple of hours she looked and was acting like she was feeling so much better.
Jackson is back with us. He and Jon are going to start staying the night in the Ronald McDonald House.

Saturday, August 17, 2013

8.17.2008

Written August 23, 2008 

August 17th

Day 12

We had a pretty good weekend. Hannah has slept a lot and so has Jon and I.
Hannah did throw up twice, but after that she acted as if she felt better. She held everything down after that. The doctors decreased her morphine pump, she is tolerating everything like a champ. She is pretty bruised from the surgery but does not act like it seems to bother her.
Jon and I both held Hannah today, She really enjoyed it and so did we. She is still moving both feet and legs. Not a whole lot of movement but they are moving. Physical therapy will be helping Hannah with her leg movement this week.
Hopefully we will get some results from pathology on Wednesday or maybe Friday.
Thank you for all your prayers. God is taking care of His little children and with His grace, Hannah will be back to her old self soon!
God Bless you All!

Thursday, August 15, 2013

8.15.2008 & 8.16.2008

Written August 23, 2008

August 15th &16th

Everything is going good. Hannah made it through the surgery just fine. Surgery started a little later than scheduled. I think they started around 10:00. The surgery lasted for about 4 hours. The tumor was NOT attached to any organs. It was just pushing them around like we thought. The tumor WAS attached to some muscle around the vertebra and to some nerves. Dr. Little had to get Dr Elbabaa (the neurosurgeon) to help separate the tumor from the nerves.
There are three major nerves that go down the right leg. One nerve was fine, one nerve was saved, and one was wrapped up with the tumor and it had to be cut. The doctors are not too worried about having to cut one nerve. They said that babies seem to bounce back and over compensate for a loss. They feel with extensive physical therapy she will be walking again.
The tumor when removed appeared to be necrotic (dead) tissue with some round blue cells. Round blue cells can be malignant but also nerves are derived from blue cells. So, to be on the safe side they went ahead and put a port in Hannah's chest. It is a port that is under the skin that can be numbed with cream and then they can use it to draw blood, give IV fluids, and/or any other medicine or treatment if necessary. Having the port will decrease the times she would have to be stuck with an IV or stuck to get blood for lab testing.
Hannah's incision from this surgery is by her belly button and goes around to her side. It is about 5 inches long. After the surgery we were able to come back to our room on the oncology floor. Hannah did so good during the surgery she did not have to go to the PICU, which is a major blessing. A lot of nurses and doctors were shocked she did not have to go to the PICU after such a major surgery. As well as shocked that she is doing so well.
Hannah is not in much pain and she is already drinking pedialyte. We have to wait about 5-7 days to get results from pathology to find out what exactly what the tumor consisted of and what typed of treatment she may need if any!
Thank you so much for all the prayers and being concerned about our Hannah. She is a fighter and with God on our side all things are possible.
Jackson is doing well and loves his sister so much. The hospital has a waterfall that you can through money in and make a wish. When Jackson goes down stairs with Jon or I he asks for some money. Then he wishes every time for Hannah to get better. He is so precious.
Also, yesterday after Hannah's surgery Ty Pennigton from extreme Makeover Home Edition was at Arkansas Children's Hospital. A boy named Job has been sick with Leukemia, I think, for over 6 years and he is getting a new house. Ty and the film crew were outside our door filming. When they were done Ty came in to each room on the oncology floor and talked to the patients. Jackson, Hannah, and I took a picture with Ty! IT was neat.
Thanks again for all your prayers and support. I will keep you posted with any changes and let you know what we hear from pathology.
Please continue to pray for a Miracle and that the tumor will be nothing except dead tissue.

Monday, August 12, 2013

8.12.2008

Written August 23, 2008 

 August 12th

Day 7

Hannah ate more for breakfast today than she has ever ate at one meal. She had two jars of baby food, 1/2 apple juice, 1/2 strawberry yogurt, and 16 oz. breast milk. WOW! What a big eater we have. She has ate great all day and has had a lot of dirty diapers to prove it.
The oncologist came in again today. He told us that they received another pathology report. The report stated that Hannah's tumor is a fast spreading malignant tumor but they are not sure what kind of tumor. (How they get that after yesterdays report, I am uncertain.) He says we are still going on with the surgery on Friday to remove the tumor so we can send it off to as many pathologist has possible. This will help us figure out what it is and how to treat it and Hannah.
We feel like we are riding a roller coaster every day. I am just ready for the surgery to take place and for Hannah to be OK.
Please pray for Hannah. Please pray for the tumor to go away. I pray that when the surgeons open Hannah up on Friday that the tumor is gone and the doctors are just so confused. I pray that GOD heals our Hannah.
Thank you for all the prayers.

Sunday, August 11, 2013

8.11.2008

Written August 23, 2008

August 11th

Day 6

Hannah had another good day. I really enjoy these good days. She is starting to act like our Hannah. Hannah ate a lot and finally went poop. (She had not gone in 6 days.) We were told that the neurosurgeon were done with us so we would be moving to 3 Gold, the Oncology floor. They deal with tumors of all kinds.
 Hannah had physical therapy for the first time. It was pretty dramatic. We took her to a special room for physical therapy. She was scared. She did not know these people and they were wanting her to do all kinds of things. She was just not happy. We went back to her room and she was fine.
The Oncologist came in today and told us the results to the biopsy. The tumor tested negative for NeuroBlastoma and negative for GangloNeuroBlastoma. These are the things that the doctors were 90%+ sure that Hannah has. 
He said we were supposed to have the results that Friday, but none of the pathologist could figure out what kind of tumor Hannah had. It just kept testing like dead tissue. Thank You Jesus!
Since they can't tell what Hannah has they want to go ahead and do the other surgery. Hannah will have surgery this Friday at 8:30 to remove the large tumor in her abdomen.
Please pray that the surgery will go good and that the surgeons can remove all of the tumor with out trouble and minimal blood loss.

Saturday, August 10, 2013

8.10.2008

Written: August 23, 2008

August 10th

Day 5

Today, Sunday, Hannah did great. She has ate more today then she has ate in like three months. (Thanks to the steroids...I am sure.) Hannah set up for about 25 minutes and ate her dinner. I was so proud of her. She has only had Tylenol for pain two times today. She is doing amazing. God is an awesome God and is doing wonderful things for Hannah. We are just in a waiting mode waiting for the pathology report.
Thank you for all the prayers and all the positive feedback. It really helps to know that people are praying for us and thinking about us.
Jackson is coming to the hospital tomorrow and will be spending the rest of the week with us. Jon, Hannah, and I are really excited to have him with us.

Friday, August 9, 2013

8.9.2013

Written August 23, 2008

August 9th

Day 4

We had another good day. We were able to move into a private room. Hannah's appetite is increasing and she is not taking as much pain medicine. We changed the dressing to her incision from her surgery. It  is not as bad as I was imagining but it is approximately 6 inches long down the middle of her back. She is such a strong girl. When she is not tired she is like her normal self. Hannah is smiling, clapping her hands, being silly and talking. She just gets tired pretty quick. We had a visit from physical therapy and occupational therapy and they will start working with her on Monday.