10.31.2008

Written Oct 31, 2008 

The surgery did not take place until 5:30. The neurosurgeons wanted Hannah's platelets to be over 100. Therefor Hannah had to receive a platelet infusion. Hannah made it through her surgery with no problems. The first thing she said when she awoke form the sedation was 'daddy' but she wanted mommy to hold her! I was happy that Jon came to visit us yesterday and to be with us when we received the MRI results, who knew she would have to have a surgery too! Hannah had another CT scan this morning to make sure the new 'chemotherapy reservoir' was in the proper place and to make sure her brain was well. The results said everything is how it needs to be. There is still a little inflammation on the right side of her brain where the reservoir went into the ventricular but it should go away in due time.

Hannah's tumor FREE! Hannah's tumor FREE!

Hannah's ANC is up to 2450! It usually goes up before it goes down after her chemotherapy. Hannah's platelets are up to 202 after having the platelet infusion yesterday! Everything is looking good for Hannah to get to go home on Monday as long as her potassium goes up. It is staying really low even with all the potassium she is receiving in her IV fluids. All else fells she may have to go back onto the TPN but for a shorter amount of time. We will just have to see what the weekend has in store.

Please pray that Hannah's ANC stays elevated and that her Potassium elevates up to the normal range. Also, please pray that Hannah's new reservoir works with no problems from here on out.

"Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours." Mark 11:24

Keep the Faith!

10.30.2008

Written Oct 30, 2008 

MRI results are in.
Drum roll please.....................Hannah is tumor FREE!
Yea! No more tumor! Thank you Jesus!

On the flip side we had a crazy night. I noticed that Hannah's ommaya reservoir was not going back down to its original size. I informed the nurse and she paged the neurosurgeon on call. They agreed with me that it should be back to its original size by now. They viewed the MRI and Hannah had a CT scan of her head this morning. The doctors came to the conclusion that there is inflammation where the ommaya enters into the ventricular of the brain.

Hannah is having surgery today in just an hour or so.

The neurosurgeons are going to remove the ommaya reservoir and place a new one on the other side of her head.

We are definitely riding a roller coaster today! But we are SUPER EXCITED about the MRI results! Thank you to everyone for all the prayers for Hannah. She will be having a ruff day today and she still has a long journey ahead of her but Praise God the tumor is gone!

Keep the Faith!

10.28.2008

Written Oct 28, 2008 

Hannah had a pretty good night last night. We thought she was going to spike a fever. We checked her temperature and it was 100.4 then 15 minutes later it went down on its own! I was happy she tolerated everything so well.

This morning Hannah's electrolytes were way off. Her potassium was down to 1.8, which is very very low. She had to receive a potassium bolus and transfusion today which helped out a lot!
Most of today Hannah napped. The chemotherapy really makes her tired. However, Jenny from physical therapy did come by and she worked out with Hannah. Hannah received a walker today. She was very curious and wanted to know what it did. She was not that happy about having to walk since she was so sleepy but with a little help she did it! I was so proud. Hannah's right leg just needs to wake up and then she will be ready to go!

Besides being sleepy today Hannah has been a little more nauseated then normal. If a little nausea and sleepiness is the side effects we can take it. The nurses are giving her extra medicine for her nausea which is helping too.

It is around 11 pm and Hannah has a temperature of 100.8, the nurse had to draw blood cultures and we are having to check her temperature every 30 minutes. Hannah can't have Tylenol until 4 am because of the chemotherapy she has received this evening.

***************
UPDATE: Hannah ran a temperature most of the night. Here fever went up and down, around 3 am it spiked up to 102.0! She has slept well most of the night. This morning her fever is gone. I am wondering if the fever is just her body reacting to the chemotherapy since it only happens during the evening? She is still asleep and doing well this morning!
***************

Please pray with me and believe that God will take Hannah's fever away and no infection will show up in the cultures. Also, continue to pray for the results of Hannah's MRI tomorrow let her body (brain & spine) be free of any tumor or cancerous cells.

We did get a roommate today. A cute little 11 month old boy that was diagnosed with Leukemia a few months ago. He is super cute and his mom is a good women. I think we both have enjoyed each others company.

GOD IS GOOD!

10.27.2008

Written Oct 27, 2008 

We are officially in Little Rock!
We all (Hannah, Jon, Jackson, and I) arrived around 8:45 this morning. We went to the clinic in the hospital and we did not have to wait long; which is a plus. Next, we moved to a room and the nurse drew Hannah's blood to see what her counts were. Then, we moved into a private treatment room where Hannah received her Methotrexate chemotherapy in her ommaya reservoir in her head. (This was pretty difficult for all of us, next month Hannah will have to be sedated or have some stronger medication while having this procedure done.) Finally, we all then waited around to move into a room on the oncology unit and after about an hour of waiting Hannah received a room. Jon and Jackson went back home around 3:00 after Hannah and I were all settled in.

Hannah's lab counts are great. Her ANC is 1277! Yea...she made it over the 1000 mark and her platelets are 106. Hannah made counts and her labs are good enough for her to have all her chemotherapy!

We told Dr. Saylors (Hannah's Oncologist) how well she has been eating and he said she was little miss chunky cheeks and we are going to see how she does off of the TPN and lipids! NO MORE TPN and LIPIDS for awhile! This is great news. Hannah is making such good progress!

Also, the burn on Hannah's back is about the size of a dime today. It is looking fantastic! Hannah also had her feet and legs put in casts. Only for a short amount of time! She is getting fitted for AFO's (aka. walking braces) to help give her feet and ankles support to grow strong. Hannah will be walking again before you know it, just wait and see!

One more thing! Hannah is also going to have a scan of her brain and spine done on Wednesday to see what the status of her tumor looks like. Then she should be out of the hospital on Thursday morning!
Please pray that Hannah's body will be free of this tumor. That no tumor or cancer cells will be in her body. She needs prayer for strength and that she has no side effects from this round of chemotherapy.

'Whatever they plot against the Lord he will bring to and end; trouble will not come a second time.' Nahum 1:9
(Your sickness will leave and not come back again)

'This is the confidence we have in approaching God: that if we ask anything according to his will, he hears us. And if we know that he hears us-whatever we ask-we know that we have what we asked of him.' 1 John 5:14-15
(Be confident in your prayers)

Keep the Faith!

10.24.2008

Written Oct 24, 2008

Hannah is having a great week.
Even though we are at home we have still been very busy.
Monday to Fayetteville for lab.
Tuesday Physical Therapy at home.
Wednesday Physical Therapy at home.
Thursday to Fayetteville for lab and to access Hannah's port.
Friday Physical Therapy at home.

The burn on Hannah's back is doing fantastic. Today it is about the size of a nickel and it has tissue growing over it so it is not an open burn. Thank you for all the prayers for Hannah's burn. In a weeks time the burn has went from the size of a dollar bill to a nickel. AMAZING!

Hannah's lab results are in.
Her ANC is 798. It is almost to the 1000 mark. We need it to be at 1000 for her to receive her chemotherapy. Also, her platelets are up to 82, almost 100! I am waiting to see if the doctor thinks that Hannah's counts are close enough to start chemotherapy on Monday. If we don't go Monday and her lab results keep improving we may be going to Little Rock on the 3rd of November.

********************************************
UPDATE: We are going to Little Rock on Monday for Hannah to receive her monthly chemotherapy!
(Please pray for her strength during this time and that all the bad cells are destroyed and only new cells grow!)
********************************************

Thank you for the many prayers for Hannah.

Times of trial are full of suffering, trouble, distress, affliction, misery, or pain. But God says during those times that we are supposed to "count it all joy" because "the testing of your faith produces patience" (James 1:2-3)....God says patience makes us "perfect and complete, lacking nothing" (James 1:4)

Keep the Faith!

******Don't forget to watch EXTREME MAKEOVER HOME EDITION this Sunday! This is the episode that was filmed when we were in the hospital. A boy named Job has been doing treatments for 6 years. He lives in Bigelow, AR. and received a new home. They filmed a lot at the hospital and Hannah's doctor, Dr. Saylor's, is Job's doctor as well and he will be on the show. Check it out!******

10.21.2008

Written Oct 21, 2008 

“Hope For Hannah” Benefit Car Show & Poker Run

When: Saturday November 1, 2008 from 10:30am – 4:00pm

Where: 1714 S. Kelly Ave Edmond, Ok. (Physician Care PM)

What: Poker Run Begins @ 10:30am with last bike in by 3:30pm

Car Show Begins @ 11:00am along with the following:
Face Painting, Moon Bounce, Raffle, Snack Bar, Beverages
And much, much more!

Why: To help raise money for Hannah and her family. Hannah is 16 months old and was diagnosed with a rare cancer this past August and was hospitalized for almost 3 months. Hannah just completed 21 treatments of radiation and will have to continue chemotherapy for 2-3 years.

Participation in all of the above is FREE with your donation.

If you are interested in being a sponsor or have any questions regarding this event please contact Amy.

All money raised goes to the
“Hannah Boles Cares Account” at Arvest Bank (THIS ACCOUNT IS NOW CLOSED)

'Faith is the confidence that what we hope for will actually happen; it gives us assurance about things we cannot see.' Hebrews 11:1

10.20.2008

Written Oct 20, 2008 

Hello Everyone!
Hannah has had a fabulous weekend. She really enjoys being at home and Hannah received a visit from each grandparent this weekend. Hannah loves her grandparents. They make her smile a lot!

Please have a seat before reading the following:
Hannah is now moving her left leg! Yes, her complete left leg is moving. She is pulling her knee up and down. Also, Hannah's right foot is moving. That is the side that only the toes have been wiggling. She is able to point her foot down and flex it back.
What a MIRACLE. The doctors were unsure that she would regain function in her legs after the tumor compressed her spinal column and nerves.
Look at her now. Hannah's right leg is the one that had the nerve cut so it is a little behind but it is working more and more every day!

Hannah and I made another trip to Fayetteville today. She had to have lab work done and the nurse needed to check out Hannah's burn on her back from her radiation. Her ANC is 720. It is still going down but it is over 500 which is good. Hannah's platelets are up and her blood count too! Everything with the lab results are good. Hannah's back is looking great. Since Thursday her burn has shrunk to half the size it was. It looks really well. I am so thankful for the speedy healing of her back.

Hannah will start Home Health Physical Therapy tomorrow. The lady should be here in the morning. I am anxious for Hannah to get more therapy it really helps with her legs and strength. Then, on Thursday Hannah has to go back to Fayetteville for more lab work. If her back is healed up enough and if she makes counts we "could" be going to Little Rock on Monday!

Thank you so much for all the prayers for Hannah. Please pray for her back to heal and her counts to increase. I believe that God has a purpose and is healing her body right in front of our eyes.
Keep the Faith!

10.17.2008

Written Oct 17, 2008 

Hannah did good at her doctors visit. The Fayetteville clinic is a lot different then at L.R. but the people were very nice. I think all in all it will be fine. They want what is best for Hannah and I appreciate that. More less they are kind of the median between us and L.R. when we are home.

Hannah's back is still looking good the medical professionals say, although I think it looks painful and not so good. We are having to treat her back with special medicine three times a day with a special dressing to protect it. I pray this painful burn heals very rapidly.

We will not be going to L.R. until Hannah's back heals and she will still need to make counts!

We received Hannah's lab results back this morning. Her ANC is 800. It is good but not high as we would like it. Her platelets are 24, they appear to be on their way back down. We thought her platelets would increase after having that platelet transfusion last week but we were told that even Hannah is finished with her radiation it will continue to work for about two more weeks. This could be the reason it is decreasing!

Hannah is doing good. She is really enjoying being at home. Jackson and her are getting to spend a lot of good quality brother and sister time together. It is so precious watching them play and share together.

Please continue to pray for Hannah. Hannah's burn on her back need to heal up so she will not be in pain and so she can get her chemotherapy.
God Bless You All!

10.15.2008

Written Oct 15, 2008

We made it home around 11 pm on Monday night.
When Hannah got home she pointed outside and said, "Sadie" (our dogs name), she enjoyed looking at all the rooms of the house. Hannah knew she was home and she has been happy to be here ever since.
We have had a very busy past two days. Jon and I have been trying to unpack stuff and organize things. The seasons have changed since we have been at the hospital and the house and closets need to be organized.

Hannah is doing good and enjoying playing with all her toys and Jackson. Jackson was playing doctor with Hannah and Hannah let him give her a shot. It was pretty cute. She is such a brave little girl. Also, Hannah has been trying to get her appetite back. She is eating some baby food and drinking a lot of water and juice. Hopefully her appetite will continue to increase so she will not have to have the TPN and lipids anymore.

Hannah has a doctors appointment at the clinic in Fayetteville tomorrow and we will have her lab drawn and her port reaccessed. There is a 'rumor' that if she meets counts tomorrow we maybe going back to Little Rock on Monday. But as of right now we are unsure.

Please continue to pray for Hannah. The burns on her back need to heal as well as her strength and appetite to increase. Thank you for all the prayers.
Keep the Faith!

*****Happy 16 month Birthday to Hannah*****

10.13.2008

Written Oct 13, 2008 

We are in the clinic still at 5:10. Hannah's lab counts were almost where they needed to be, although her burns on her back are to bad for her to have chemotherapy. She needs to have time for her body to heal. Hannah's HGB (blood count) was 7.0, so she is getting a blood transfusion right now. We will be headed back home to NWA around 6:30-7:00. It has been a very long day but NO MORE RADIATION and we get to go HOME! We are all excited. Thank you for all your prayers and I will update more when we do get home. Keep the Faith.

10.10.2008

Written Oct 10, 2008

A SPECIAL PRAYER REQUEST!

Today, I received a phone call from Hannah's doctors nurse. Hannah is doing fine but she may not be able to get her scheduled monthly chemotherapy this coming week.

Hannah has to meet counts to get her treatment.

This means Hannah's ANC has to be over 1000, her platelets have to be over 100 and her HGB (blood count) has to be over 8 or 9. If her 'counts' are not at this level or higher her body can not tolerate the potent chemotherapy.

I need everyone to pray that Hannah will meet all her counts on Monday so she can get her treatment. Her treatment is very important, she needs it to kill all the bad cells.

However, if she does not meet her counts we will be sent home. Yes, home to NWA! I am excited about going home but I know she needs her treatment too. If we are sent home we will go to the hospital in Fayettville once or twice a week to get lab work done to see if she meets her counts. When she does off to Little Rock to get her chemotherapy!

Please pray that Hannah will meet her counts on Monday! I ask you to agree with us and pray that Hannah will be healed and completely delivered from this cancer.

"Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in heaven." Matthew 18:19

******ONE MORE RADIATION TREATMENT******

10.9.2008

Written Oct 9, 2008

Hannah has gotten herself into trouble!
On Wednesday she commando crawled her needle right out of her port! She was playing and wanted to crawl and pulled her self across the bed and her needle was dislodged. It was poking her and she was upset so I removed her dressing and the needle out of her chest. She instantly was a happy baby. She has to have her port accessed 24-7 while she is having radiation and since she is receiving TPN and lipids (IV nutrition) 12 hours each day.
I called my new friend Harmony (Lillie's mom - continue to pray for Lillie) to share with her my experience and she informed me the clinic nurses may still be at the clinic. It was around 5:30 in the afternoon, so it was past clinic hours. I did not want to set in the ER for who knows how long so I went up stairs to the clinic first. It was closed but a few nurses were still their. They called the doctor on call and got the ok to reaccessed Hannah! We were in and out in less than 30 minutes. Thank you Jesus and thank you Harmony for the incite!

Today on the other hand is always one of the busiest days of the week. Thursdays are hard on everyone especially little Hannah. She had radiation this morning at 8 am. Hannah did great and awoke from the sedation happier than ever! Then we arrived at the hospital at 9:30 am. Hannah had physical therapy and did great!

Hannah was in the crawling position (on her hands and knees with support of course) and she pulled her left leg forward! YEA! What a wonderful miracle. She was not doing this or even wanting to try it yesterday and she did it three times in a row! I was so proud of Hannah. Also, Hannah's physical therapist Jenny was asking Hannah if she wanted a toy. She said, "Do you want this toy?" and Hannah replied, "Yes!" as plain as day she said YES! Both, Jenny and I's jaws dropped with amazement. Hannah has never said yes before. She has nodded her head yes but has never spoken it!

After physical therapy we went up to the clinic. We waited and waited and waited. It is a very busy clinic. It's so sad to see all the sick kids. Hannah had her blood drawn and we had to wait a little longer for the results. Hannah's ANC is 753, it is still going down. Her platelets were only 19! (The normal range is between 150-400) While at the clinic Hannah received her weekly chemotherapy and a platelet transfusion. She did really well all in all. Finally, after spending 5 1/2 hours at the hospital we were on our way back to the apartment. We ALL were exhausted.

Keep the Faith!
Pray for Hannah's lab counts to improve!

"Faith is the confidence that what we hope for will actually happen; it gives us assurance about things we cannot see." Hebrews 11:1

****Only 2 more radiation treatments!****

10.8.2008

Written Oct 8, 2008 

3 MORE RADIATION TREATMENTS!

Hannah is so excited! I think she is anyways. I know that we are all so happy! It felt like this journey was never going to end. I mean this journey is not over but to finally get to go home in approximately 10-12 days is so great. On August 5th when Hannah and I came to Little Rock on the ambulance, I never would have imagined we would still be here 2 1/2 months later. It has been a long stay but we are ready to get back to Siloam. We will still be visiting Little Rock ever month for a week at a time for 2-3 years, but this will be much more tolerable.

Hannah's has been doing wonderful. She is starting to be a copy cat and do anything that you do. A fake cough, clicking your tongue, patting your head, anything you do she will do.
It is super cute!
Today Hannah rolled from her back to her belly all by herself. She also commando crawled the length of the bed to me. She can not get her knees under her yet. Hannah has a fight in her that I have never seen. She wants to get up and go. I believe by the Grace of God she will be running and walking before we know it.

Jon and Jackson left yesterday to go to Siloam. Thursday is the golf tournament for Hannah and Saturday is the benefit concert in Siloam with 'Jackson Waters' preforming at 2:00. If you have any questions about these events just e-mail me and let me know. We would love to have everyone and anyone who can come to go to the concert.
My Aunt Linda came to Little Rock to be with Hannah and I while Jon is gone. I need an extra hand and she is such a great helper. Hannah is really starting to get super spoiled!

Thank you all for continuing to pray for Hannah.
Please pray for her lab counts to go up and for her to get more strength so I can chase her around.
God Bless You All!

10.6.2008

Written Oct 6, 2008

What a wonderful day Sunday was.
We all got up in a good mood. Jon made us pancakes, eggs, and bacon. We all got ready for the day then off we went. We can not go to church because we can not go to public places with a lot of people (excluding the hospital). So, I had a great idea. Let's go to a park! I found a park and thought we could play outside and have a picnic lunch. The park was not a park. It was a lot of nature trails in the woods. We hiked down the trails for about 30 minutes, we were all getting tired and hungry so we hiked back up to the car. We drove around and could not find a place to have a picnic so back to the apartment we went. We all ate our peanut butter and jelly sandwiches, then took a nap.
Hannah seemed to enjoy being outside and the fresh air. She and Jackson both took really good naps. We let Jackson stay up late this night and he watch the movie 'Annie' with Jon and I, one of my favorites!

Today, Monday has been a whirl wind of a day! I woke up this morning and looked at the clock and it was 8:30! Hannah's has her radiation treatment at 8:20. We can't be late, we can't miss her treatment or they add it to the end, which means more days we have to be in Little Rock. I called Carti and let them know we were running behind but would be there in 10 minutes. One of my number one pet peeves is being late for an appointment. Needless to say we made it in one piece and Hannah received her treatment.
THANK YOU JESUS!
After Hannah's radiation we had to go to the hospital. Monday's are Hannah's lab work days and of course physical therapy!
Hannah's ANC is 900 today. That is lower than we would like to have it. Hopefully by Thursday, when we go to the clinic her levels will be better. Hannah did well in physical therapy. We came back to the apartment and everyone is taking a much needed nap!

Hannah's port site is looking really good. It does not look like it is infected! CAN I GET AN AMEN! Thank you for the prayers for Hannah's port site.

Please continue to pray for Hannah. We pray for a complete and total healing of her body and that her ANC increases!

10.4.2008

Written Oct 4, 2008 

Hannah had a good day on Friday. We all went to Carti for Hannah's radiation treatment. She did really well and woke up from the sedation really quick as she always does. Hannah only has 6 more radiation treatments and we are all very excited. Hannah's back needs to heal up from the burns and she will not have to be sedated every day as she does now for her treatments.
After her treatment we came back to the apartment and all took a nap. Later that afternoon we went to the hospital. Hannah had to get her port reaccessed. The needle and tubing from Hannah's port has to be changed weekly. When the nurse was cleaning her port site she noticed that where Hannah's needle was looked red and like it could be trying to get infected. The nurse put antibiotic ointment on it and accessed her port in a different location so that we could keep an eye on the spot. If the area swells, becomes more red, has drainage or if Hannah runs a fever we have to go to the hospital.

Today was a wonderful lazy Saturday. We all slept in until about 8 o'clock. We did nothing today expect enjoy being with each other in the apartment. Hannah only has about two more weeks here in Little Rock. If she stays healthy and strong we should get to go home soon.

Please pray for Hannah's port site to be free of infection and that Hannah stays strong and healthy.
Keep the Faith!

10.2.2008

Written Oct 2, 2008 

7 MORE RADIATION TREATMENTS!

Yesterday and Today have been wonderful days!

Yesterday, Wednesday,
We had Hannah's radiation treatment in the morning and then we came back to the apartment for a nap. At 1:00 Hannah had physical therapy at the hospital. She did very well. Hannah is trying to pull her self up into the standing position. She needs help with her legs, especially her right leg, but the will power is there and she is trying hard. She can now push her self up to the sitting position when she is laying down. (The braces on Hannah's feet in the picture are so she does not get drop foot. Since she is not walking her feet are wanting to point down.) Hannah is getting stronger each and every day.

Today, Thursday,
Hannah had radiation this morning and then off to the hospital for Hannah's lab draw and her weekly chemotherapy. Hannah's ANC was 2,480 today! Her lab values are looking really good. Hannah did not go to her physical therapy today. The chemotherapy and radiation together really makes her tired. She has been napping all afternoon.

Also, the past two days Hannah has been eating food and keeping it down! She is drinking milk, apple juice, eating spaghetti, home made chicken pot pie and pizza. None of it has came up and we are very thankful for that!

I found this saying and thought I would share it with you.

If we are going through difficult situations that are not caused by our own disobedience or neglect, we can know that God has allowed these trials in order to work a greater purpose in us. They will test our faith, patience, and love. And the way to get through them successfully is to stand strong by praising God in the midst of whatever is going on.

Please stay strong and believe with us for a complete and total healing of Hannah's body.

9.30.2008

Written Sep 30, 2008

HANNAH IS OUT OF THE HOSPITAL!

She was discharged Monday afternoon. We have had a busy past couple of days and not to much happened over the weekend.
Here is the recap of Hannah's past few days!

Friday,
Hannah's ANC was 3,782! She had her morning respiratory treatment and off to Carti for her 10 radiation treatment. Jon stayed the night at the hospital with Hannah and Jackson and I went to the apartment. It was the first time I have ever been away from Hannah. It was hard but greatly needed, the sleep that is.
Jon and Hannah had a rough night. She gets really thick mucus at night that chokes her. She does not understand when you tell her to cough so we have to suction it out. Hannah does not like to be suctioned but after it is done she can breath so much better.

Saturday,
Hannah's ANC was 2,050. She had two breathing treatments, on in the morning and one at bed time. Jon and Jackson stayed at the apartment. Hannah and I had a long night with the mucus.

Sunday,
Hannah's ANC was 3,644! Hannah and her breathing treatment in the morning and we received the news that she should get out of the hospital on Monday!

Monday,
This was a super busy day. The day you get to leave the hospital is always a busy day. Hannah's ANC was down to 2,007. Her blood count was down too. After Hannah's radiation treatment she had to get a unit of blood before she could be discharged. Hannah will also be receiving TPN and lipids at home through home health.
We finally were able to leave the hospital around 6pm and off to the apartment we went.
Hannah was excited. She was laughing and smiling the whole time in the car. I think she loves being out of the hospital as much as we all do. It is amazing how much she knows and understands for a 15 month old.
Our night at the apartment went well we all received a good nights rest.

Today. Tuesday,
We had to give Hannah her breathing treatment before Carti. Jon did a great job at that. We all loaded up in the car and off to Carti we went. Hannah had her radiation treatment then back at the apartment for a nap. Then at 1:00 we had to go back to the hospital for Hannah's outpatient Physical and Occupational therapy. We made it back to the apartment and now everyone else is taking a nap.

Hannah is doing really good.
Only 9 more radiation treatments!
Hannah has been getting burns on her back from the radiation. (She is getting radiation from her T10 vertebra to her L3, which is the majority of her back) It was a little pink after the first week of treatments and it has only gotten worse. It now looks worse than a sunburn and she is getting blisters and they are popping. We are putting special gel on it but is still is uncomfortable for her.

Please pray her burns will go away and that Hannah continues to stay strong and well.
Keep the Faith.
Our God is a good God and we are seeing Miracles happening every single day!

9.25.2008 (event update)

Written Sep 25, 2008

Here is a list of some things that are happening for Hannah. 

Any questions or concerns just e-mail me and let me know. -Tiffany

Saturday, September 27th at 9am
A co-ed softball tournament will to be held @ Sodie Davidson Park in Waldron, Arkansas located on S. 71B. Entry fee is $125.00, there will be concessions for sale and special edition 'Hope for Hannah' softball tournament 2008 t-shirts for sale!

Saturday, October 4th from 1-3:00
A 'Hope for Hannah' benefit concert will be held at the 1st Church of the Nazarene Fellowship Hall, located at 1816 Rice Rd. off of Hwy. 71 South in Waldron, Arkansas. The featured band is "COMMON THREAD" along with local talent. There will be a bake sale, CD sales, and a love offering.

Thursday, October 9th at 9:00 am
The Hannah Boles Golf Tournament will be held at The Creeks Golf Course off of Hwy 112 in Cave Springs (near Springdale, Arkansas) Registration Deadline is Tuesday, October 7th. Cost per team is $200 for 4 players. Five-dollar putting contest before lunch; plus 5 mulligans per team for $25. If interested in having a team and playing call Bruce or  if you are interested in being a sponsor please contact Kirk.

Saturday, October 11th at 2:00pm
A 'Hope for Hannah' benefit concert will take place at Community Christian Fellowship, 525 South Lincoln in Siloam Springs, Arkansas. The featured band will be "JACKSON WATERS", with opening music by John and Bradford. Tennille Price and Cindy Kelley will also be preforming.
The doors will open at 1:15.
Admission is FREE with donations at the door!

Thank you so much for all your love and support for our little Hannah. 

 We love you all and appreciate each and every one of you. 

Your thoughts and prayers mean so much. 

Thank you!
Keep the Faith.

9.25.2008

Written Sep 25, 2008

Today is Hannah's 14th day in the hospital.

With Hannah's first 35 days in the hospital and our 2 1/2 days at the apartment and now this hospital stay of 14 days. Hannah has been in the hospital for 49 days and we have been in Little Rock for 51 days and still counting.

Hannah only has 12 more radiation treatments.

The doctor told us today that Hannah may be discharged from the hospital on Monday. Her lab values are increasing every day. The doctor said he could not ask for anything better. Hannah's ANC was 3,311 yesterday and today her ANC is 3,835! She is definitely NOT neutropenic.
Hannah has been on a total of four different antibiotics during this hospital stay and after today she will not be on any. YEAH!

Today and yesterday are about the same. Hannah wakes up and receives her Albuterol updraft breathing treatment. She gets dressed and off to Carti we go in the ambulance. We get back to the hospital around 10:00, then it is nap time. Hannah gets physical therapy and occupational therapy every day. The rest of the day consists of napping and playing with toys.

Also, today Hannah will receive her weekly chemotherapy of Vencrisitne.

Please pray for Hannah to stay strong and that she gets her appetite back, she is still receiving TPN and lipids so she is getting plenty of nutrition. But I know she would like to eat real food too.

Thank you for all the prayers.
Keep them coming and keep the faith!

9.23.2008

Written Sep 23, 2008 

We are 72 hours + fever free! 

Hannah has had a good couple of days. Yesterday her ANC went back up to 568 and then today her ANC was 1,315! Hannah's HGB (blood count) is low today and she will be getting a blood transfusion later this afternoon.

We went to Carti for radiation both yesterday and today and all went well. Since Hannah is in the hospital we have to ride in an ambulance from Children's to Carti and both days we were able to ride with our good buddies Lillie and her mom Harmony! We all enjoyed the ride.
Only 14 more radiation treatments!

Hannah had a GREAT physical therapy treatment today! She lifted her knee, moving her left quad muscle. The physical therapist was excited, we were ALL very excited, she said that the quad is a great walking muscle! Hannah maybe walking again before we know it! Also, the toes on Hannah's right foot are moving more and more each day. 

We may get to go back to the apartment sometime towards the end of the week.
Thank you for all your prayers. Hannah is growing stronger and stronger each day.  
Please pray for a total healing.

9.21.2008

Written Sep 21, 2008 

Hannah had a good night last night.
NO FEVER!
Yeah! Yeah! Yeah!

Today, as you can see by the new picture, Hannah has had a good morning. Still no fever and she decided to get dressed up and play on the computer.

Hannah's ANC is 486. It is on its way back down. She is now neutropenic again. Up and down, up and down. Even when it is on the way down Hannah is still a happy baby.
She is such a fighter.

We have added a couple more new pictures; so check them out!
Have a blessed day.